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Palliative Care Voices
Welcome to the Palliative Care Voices website. Here you can find out about who we are, why we exist and what we do.
Palliative Care Voices is the lived experience group of the WHPCA. The name was originally used for a group established by Lucy Watts MBE in November 2017. Lucy was a prominent and vocal palliative care advocate from the UK who sadly passed away in 2022. The group she set up was no longer active but the WHPCA has established a lived experience group to provide mutual support and learning through regular zoom meetings and importantly to contribute to the advocacy work of the WHPCA. Although the WHPCA group was established by Helena Davies, the WHPCA’s advocacy officer and herself an individual living with palliative care needs it is anticipated that there will be shared leadership of the group. In recognition of Lucy’s tremendous contribution to palliative care advocacy we are using the name of the group that Lucy established (with her mother’s permission) so that her work continues to be acknowledged. PCV is in its early stages at the moment but it is hoped that it will develop and grow so that people with lived experience of palliative care either as recipients themselves or as carers have a louder voice locally, nationally and globally to influence policy making and politics as well as supporting each other and learning from other people’s experiences.
Want to get involved or get in touch?
If you are a patient or carer with lived experience of palliative care and would like to be part of and contribute to the work of Palliative Care Voices then please contact Helena Davies at hdavies@thewhpca.org. I will get back to you and provide you with details of the next group meeting.
Palliative Care Voices 